Clinical Data Representation

The Working Group structure in VICC was been reworked to focus on Projects. This page is maintained as a record of former Working Group activities.

About CDR

This working group focuses on the representation and normalization of clinical data associated with variation. Ultimately, this group is responsible for the development of guidelines and tools for the normalization of clinical data elements, including therapeutics, phenotypes, and diseases.

This group meets on an ad hoc basis. To receive updates specific to CDR, including call details and agenda, please join the CDR mailing list (follow link and click the blue “Join Group” button).


This group hosted an in-person VICC / joint hackathon in January 2020 with keynote speaker and AACR President Elaine Mardis, ahead of the inaugural AACR Advancing Precision Medicine Drug Development conference.


Working Group Leads